Hidden11 years ago

Excuse my ignorance what is Alpher 1 I have never heard of this and want to learn more, it's only six months since I was told moderate copd. There is still much that I do not understand, hoping that will change here with more experienced members passing on what they have learned.

mumsy11 years ago

It's a genetic form of copd.

Hidden11 years ago

How do they test lungs for genetic copd, have a strong dislike of operations, having two sons would have to know if there is a part of this genetic.

mumsy11 years ago

Just a simple blood test.

Hidden11 years ago

I will ask my GP if he can refer me for a test, soonest. Will this alter the way copd is treat should anything be found, could be worrying without reason here but have a need to know.

Hidden11 years ago

A think its emphasema a know thay do genetic test for that no thay just band most lung problems as copd ... Few years ago thay would give proper name of condition's but now its very vauge

valj11 years ago

It sounds like it could be alpha -1 antitrypsin deficiency, but you would need to check this.

mumsy in reply to valj11 years ago

My gp told me my antitrypsin level is 0.995?

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mumsy in reply to mumsy11 years ago

I make a error it's 0.95!

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Hidden11 years ago

Hi, if you haven't already then can I suggest calling us here at the helpline to speak to a nurse for a little more clarification? If / when you are ready of course, tthe no is: 03000 030 555 (or you can email if you prefer).

Take care.

fishtail11 years ago

its Alpha 1 Antitrypsin deficiency.(Bronchiectasis-lack of a certain enzyme in the lungs).Mine is hereditry and my children have been tested for it.my two nephews have it so has my younger brother.Its not always hereditry,my friend has it due to having pnuemonia and TB when she was a child.The name COPD covers a wide range of lung complaints.Not just emphesemia.Hope this info is helpful to you.x

gemmalou11 years ago

what level was it hun? My sister has just found out she is 0.8 x

mumsy in reply to gemmalou11 years ago

I was just told it was low.my gp is making a appointment for the local chest clinic at hospital.

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mumsy in reply to gemmalou11 years ago

My level is 0.95.

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