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im having trouble with cramps in my feet in bed at night, anyone else have this or am special....

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sesh123
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raptor profile image
raptor

Sorry you are not special,, hahahaha,, its the inhalors,, i believe a nice little side effect,, :)

chrissie53 profile image
chrissie53

yes i to get cramp in my feet,,,,

primrose71 profile image
primrose71

hi sesh123 i have this olso get it in my fingers too when i mentioned it to doctor he just said yes cramp was not really interested......dont now if its anything to do with inhalers or to many steroids but never had it untill a while after i was diagnosed with COPD they say tonic water helps or Doc can give you quinine tablets if really bad, know it keeps me awake with the feet is painfull, take care.

Hi there, yeah me too I find keeping them warm helps which can mean socks in bed sometimes - oh well.

Good luck,

Chris

Puffthemagicdragon profile image
Puffthemagicdragon

Very rarely I get it but I do get it in a finger or thumb and the instep of my feet. I never used to get this before getting COPD medicines.

I struggle with it quite badly especially of I can't get my feet warm. It's difficult to control/medicate. I think for folk like us it's a circulation thing (although I get it in my legs sometimes when swimming). So you aren't alone but as regards a cure them I drink tonic water and just try and keep my feet warm as its invariably when they are cold that I get the cramp.

Awful isn't it? I did used to get it in my back before diagnosis - which indefinitely put down to poor circulation of air through muscles.

Mariex

sesh123 profile image
sesh123 in reply to

hi marie, I found it was worse when cold and very painful when it moved into my shins,ive had it in my back too, very uncomfortable

jandan profile image
jandan

Oh yes I get them too usually just the one foot. When I mentioned to the Doc as usual got the reply put up or shut up it's the meds (he knows me well) I have no advice I have tried different things from believe it or not vick on sole can't remember whose idea that was to wearing a cotton sock but so far nothing has worked Sorry :(

sesh123 profile image
sesh123 in reply to jandan

oh well looks like I will have to get used to it, thanks

Bugger! I've got it in my left foot now from lying on the sofa! Ouch...

in reply to

Get up and walk around, that's what I do, and the cramp wears off. :)

sesh123 profile image
sesh123 in reply to

it gets so painful to stand especially in the shin

scrobbitty profile image
scrobbitty

First it starts in one foot so I circle the ankle round and round until it clicks but then it hops to the next foot ! If I bend the foot up at an angle it's just about bearable and like many others, socks and hot water bottle :)

sesh123 profile image
sesh123 in reply to scrobbitty

i'll give it a try thanks

I get cramp in my feet too. It's horrible. It's not as if I can cuddle them. I can hardly reach them. I find standing up and walking around helps.

sesh123 profile image
sesh123 in reply to

do you find it more painful than leg cramps?

in reply to sesh123

You mean calf muscle cramps? Nah, I'd put them on a parity. Really annoying, and usually cramping simultaneously.

sesh123 profile image
sesh123 in reply to

I find it goes up to my shin and that really hurts

in reply to sesh123

That's only happened to me a couple of times, but you are right it does hurt. Movement and massage helped.

Kath-Hope2Sleep profile image
Kath-Hope2Sleep

This is a copy and paste from a US Dentist who deals with sleep apnoea patients. When people have apnoeas their oxygen levels dip, and this is how he explains muscle cramps:-

""Here is the flow of my thoughts on muscle cramping not just in the calf and foot area but generalized muscle cramping. 1. your brain detects low oxygen levels in the blood and the only friend it has to mitigate the problem is the heart. Just to make the math simple lets assume the oxygen level is around 50% (fatal in real life). The heart would have to pump twice as much blood to the brain in half the time to get the original 100% oxygen saturation. 2. Pulse rate would rise and volume of blood flowing to the muscles would also rise as well. Muscles are very good at doing one thing- contracting. That's what muscles do! In effect, your muscles have just run a marathon at night when your oxygen levels go down and the pulse and blood flow goes up."

I'm thinking that this would also affect others, even without sleep apnoea, in connection with oxygen levels.

in reply to Kath-Hope2Sleep

That's very interesting Kath, thank you for sharing.

Kath-Hope2Sleep profile image
Kath-Hope2Sleep in reply to

My pleasure, and I know how horrible those cramps are in the night, as I used to suffer from them before my sleep apnoea diagnosis. I found the dentist's article interesting too :)

sesh123 profile image
sesh123 in reply to Kath-Hope2Sleep

thanks for that kath

Latte profile image
Latte

Try gentle pressing at little at a time on a cold floor. or a little cold water in bath or basin enough to cover your foot and gently press down.

Also quenine is found in tonic water and bitter lemon. i hate the stuff. i down it really quick but have other juice standing by for the aftertaste.

dukes profile image
dukes in reply to Latte

Yeah, I use the 'cold floor' method too Latte, it was either that or the WD-40 !

sesh123 profile image
sesh123 in reply to dukes

lol, I find cold floor makes it worse as it just makes the foot colder

sesh123 profile image
sesh123 in reply to Latte

I will give it a go thanks

Pepsicoley profile image
Pepsicoley

Exercises during cramps

During an episode of leg cramp, stretch and massage the affected muscle.

For example, if the cramp is in your calf muscle:

•Straighten your leg and lift your foot upwards, bending it at the ankle so that your toes point towards your shin.

•Walk around on your heels for a few minutes.

Exercises to prevent cramps

To reduce your risk of getting leg cramps in the future, you should do exercises to stretch the affected muscles three times a day.

For example, if your calf muscles are affected by cramps, the following exercise should be beneficial:

•stand about a metre away from a wall

•lean forward with your arms outstretched to touch the wall while keeping the soles of your feet flat on the floor

•hold this position for five seconds before releasing

•repeat the exercise for five minutes

For the best results, you should repeat this exercise three times a day, including one session just before you go to bed.

If you find these exercises useful you can carry on doing them for as long as you are able to.

Pentreath profile image
PentreathVolunteer in reply to Pepsicoley

A podiatrist recommended making a sloping board (from the side looks a bit like a slice of cheese from a round wheel) - about 4" higher at the front than the back and wide enough to stand both feet on to put in front of the washbasin in the bathroom to stand on while washing/cleaning teeth. I used to get a lot of cramp but this has gently stretched the muscles in the calves and seems to have substantially reduced the problem for me. I used to get cramp when I was quite young so probably not associated with meds for me. Still need to make sure my feet are warm before going to sleep though.

sesh123 profile image
sesh123 in reply to Pepsicoley

ive tried all that it and found little relief with foot cramps

My husband suffers with cramp in his legs and feet which is made much worse if he uses the ventolin inhaler! Not with any other drugs or using salbutamol in the nebuliser. And seemed worse when he was on the steroids recently. Sorry I cant help anymore, hope it subsides for you. TAD xx

sesh123 profile image
sesh123 in reply to

im beginning to think its the meds, thanks

ptliverpool profile image
ptliverpool

I too get cramps in the night and on waking, but I got them even before I started taking the symbicort or salamol. I just put it down to poor circulation as we get older. I have tried most of the above but find that no matter what you do it does go away eventually anyway.

I have friends who don't have COPD and they get it too.

copdber profile image
copdber

Try eating a banana every day it's something to do with the potassium in them that helps.

Some things that may help that other lung patients have tried are;

make sure you drink plenty of water each day (dehydration can cause cramping)

a glass of real indian tonic water before bed at night (for the quinine)

rub feet with vicks vapo rub at night (recommended by a foot doc)

when in cramp, always flex the foot (so you get a hamstring stretch)

I have found all the above helpful, I also found formeterol fumerate, Oxis turbohaler a fab cramp causing med. I am prescribed this but can only tolerate one puff a day, 2 puffs cause me cramps day and night in the extremities

I've heard many say about eating a banana every day as cramps can be caused by low potassium levels (as copdber mentions). There are lots of other foods also high in potassium ;

ehow.co.uk/facts_4744618_fo...

healthaliciousness.com/arti...

If night cramps are very bad and none of the above helps, check with your doctor who may prescribe quinine.

Hope you get some relief soon.

in reply to

ps We're all special ;)

sesh123 profile image
sesh123 in reply to

oh yes...

sesh123 profile image
sesh123 in reply to

thanks for that

Joany profile image
Joany

Must be the medication, I also suffer now since taking seretide. I always wear bed socks now, very sexy, BUT, something that does seem to help is magnesium - I take 200mg two hours before bedtime.

Hope that it works for others, worth a try.

Joany

sesh123 profile image
sesh123 in reply to Joany

wow ive got a lot to try, thanks

medow profile image
medow

That's for the tips, have magnesium in the cupboard so will give that a go, tonic water two, can I add a gin to that? I get cramps too, so frustrating when very tired and need to sleep x x x

sesh123 profile image
sesh123 in reply to medow

gin and tonic, you win best advice prize, lol

I was told by my GP that the only tonic that really works is Schh... You know who. Again it's to do with the amount of quinine. Another tip I was given years ago was to take good pinch of salt.

sesh123 profile image
sesh123 in reply to

so that's a gin and tonic slammer then, lol

in reply to sesh123

Excellent idea. I wonder how many you would need to take to do a proper clinical trial?

VivienneC profile image
VivienneC in reply to

Dont know, but would be willing to sign up and give it a try!

orimoko profile image
orimoko

I actually get cramps in my legs and arms, it looks like there's a lot of excellent answers for you, hope you see an answer that works.

sesh123 profile image
sesh123 in reply to orimoko

thanks, you too

hev67 profile image
hev67

it seems we all have this cramp problem back cramps i stretch opposite way, hands i just push back & feet stand bear foot in cold floor works instantly for me. Try lots of advice something will work well for u. Good luck x

sesh123 profile image
sesh123 in reply to hev67

stretching works on the back but cold floors make my feet worse, thanks

Maximonkey profile image
Maximonkey

Hi Sesh, I have suffered badly with cramp ever since I first started feeling ill. Doc said it was a side effect of all the drugs I take and told me to wear bed socks (I do, even in the summer) and drink a least one large glass of tonic water with quinine. I was sceptical but it really works. I no longer suffer from cramp. when on holiday I have to find a shop that sells Scheppes tonic as nothing else works. Good luck Maximonkey

sesh123 profile image
sesh123 in reply to Maximonkey

thanks maxi I will try that

Interesting thread.

I have been taking loads more Seretide over the past two weeks because of hayfever and yesterday some cramp started up in my right calf, really painful but at least on and off.

I wonder if magnesium would help with cramp? it's a muscle relaxant.

koala

whittington profile image
whittington

I get cramps in both feet and my fingers it can be very painful. BUT COLD FEET oh I hate it makes me feel cold all over, best cure I know for that is to put them on my hubby in bed

Chichester profile image
Chichester

I used to get this allot. I think , but cannot swear to it that some medications strip the body of some vitamins. I have found that potassium, for me at least make's it all go away. Or Tonic water is a good stop gap. I also take small doses of iron.

gerry1950 profile image
gerry1950

I get it in in both feet eventually the least change in weather and its heavy socks and hot water bottle I don't know if a mixture of oxygen steroids and water tablet

Mocarey profile image
Mocarey

I used to suffer horrendous cramps regularly. I was on soluble paracetamol for years for a different condition, anyway when I changed to a non soluble tablet my cramps all but disappeared. M

Sam364 profile image
Sam364

Have your doctor check your blood for low Potassium. Inhalers for CODP are know for causing low blood potassium levels that can cause muscle cramping. Very low levels are life threatening. Please consider this if you are on breathing medications (inhalers) and getting regular cramps. If your doctor does not comply to your request and cramping does not stop. Insist!

Chort profile image
Chort

me, too. I think done of the inhalation meds we take for our COPD can have this side effect. also heard that drinking lots of water will reduce this--very painful!

I get tingling sensations and pain in my feet,toes, and calf's,they come and go,also the feeling of tightness in under sole of feet,and ankles and calf's.I am on Spivira and Salbutamol Easi Breathe 100mcg.

I was on Seretide 500,but was taken off that for the time being,as consultant thinks it could be that med causing the Oral Thrush.

So I know it is/was not the Seretide causing the tingling in the above meds etc.